Objective: To examine the use of Video Intervention/Prevention Assessment (VIA) as a multi-dimensional, flexible, and patient-centered approach for understanding the pediatric illness experience.
Design: Overview of VIA methodology, a process in which youth with chronic illnesses create visual illness narratives (VIN) of thecontinued
Objective: To examine the use of
Video Intervention/Prevention Assessment (VIA) as a multi-dimensional, flexible, and patient-centered approach for understanding the pediatric illness experience.
Design: Overview of VIA methodology, a process in which youth with chronic illnesses create visual illness narratives (VIN) of their experiences of illness, health, and health care.
Subjects and Setting: N/A
Intervention(s): N/A
Outcome Measure(s): N/A
Results: VIA is used as a tool to better understand a patient's experience with chronic disease "from the inside out," by allowing patients to document their personal experiences with illness via video-camera recording equipment over the course of 12-16 weeks. Studies are conducted in collaboration with a condition-specific specialty clinic, and participants must meet the diagnostic criteria of the condition and are representative of the population affected. Field coordinators provide suggestions for documentation techniques, such as interviews with family members, video diaries, and house tours. The completed narrative is analyzed by a multidisciplinary team that provides both objective and subjective observations and identifies relevant themes. Participants in VIA studies have demonstrated significant improvements in their quality of life.
Conclusion: VIA is an effective method for documenting the patient experience with illness and allows younger patients to become active partners in the treatment of their chronic disease. © Center on Media and Child Health
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